Wednesday, November 09, 2011

Sometimes....

you just feel like you've been kicked in the gut when you get through dealing with all you have to deal with when your child has expanders.  So much changes with them so quickly, and when they have a bad night or start reacting differently to very normal things, like putting them in the bathtub, you have to wonder if they are just having a bad night, or are they reacting differently because their skin is more sensitive to the water because of the expansion, or are they just being a 3 year old.  Then you top off the night by trying to clip a suture that is getting irritated and festered from skin that is already stretched so tightly on the back of your very upset child, who doesn't understand why you are doing what you are doing even though you are explaining it to them the best you can.  All they know is that it hurts.  Whew, will I be so glad when we have this behind us - when we can have a normal life, without surgeries, expanders, fills, and more surgeries. 
Don't get me wrong.  I am very thankful that we have the option to remove Sophie's nevus, and I am so very thankful that Sophie is otherwise healthy and that this is only temporary.  I realize that we have it so easy compared to what other children and families are having to deal with.  This is what makes me continue to push through this, to be able to do these things week in and week out.  But, I'm not going to lie.  It is hard, but we are so blessed that Sophie is doing so well with this.  She is a trooper.  I, on the other hand, not so much sometimes.  Tonight is one of those times.

On a positive note, we are less than 4 weeks out from Sophie's next surgery. The time is flying by so fast!Below are the latest pictures of her with 400ccs in each back expander and 315 in the one on her tummy.  She thinks the expander on her tummy is so funny.  She laughs and says, "Look at my big ol' tummy, Mama!".  That makes all of this so much easier for all of us. 

Thanks so much for your continued prayers!

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